Alison is a sought-after speaker, facilitator, and collaborator who has presented nationally and internationally on public health, patient engagement, healthcare partnerships, lived experience, strategic collaboration, and epilepsy-related topics.
Featured Publications
- Prior SUDEP Awareness Profoundly Impacts Parental Trauma, Grief, and Coping Strategies: Call for a Paradigm Shift in SUDEP Practice, Neurology, Published January 2026. https://doi.org/10.1212/WNL.0000000000214623
- The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy, Epilepsia Open, Published April 2026. https://doi.org/10.1002/epi4.70237
- Sudden Unexpected Death in Epilepsy (SUDEP) Summit: Recommendations and Priorities for Clinical Action, Awareness, Public Health and Epidemiology, and Basic Science, Epilepsy & Behavior, Published October 2025. https://www.epilepsybehavior.com/article/S1525-5050(25)00388-9/abstract
- Barriers to Medication Adherence in People Living With Epilepsy, Neurology, November 2024. https://doi.org/10.1212/CPJ.0000000000200403
- Health Disparities Among Sexual and Gender Minority People Living with Epilepsy: A Cross-Sectional Analysis, Neurology: Clinical Practice, Published October 2024. https://doi.org/10.1212/CPJ.0000000000200379
- Establishing a learning healthcare system to improve health outcomes for people with epilepsy, Epilepsy and Behavior, Published April 2021. https://www.epilepsybehavior.com/article/S1525-5050(21)00039-1/abstract
- Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system, Epilepsia, Published December 2020. https://doi.org/10.1111/epi.16733
Topics I Speak On
- Strategic Patient Engagement
- Public Health & Systems Change
- Facilitating Difficult Healthcare Conversations
- Caregiver & Family Support
- Health Equity & Inclusive Care
- Storytelling, Advocacy & Leadership
Featured Speaking Engagements
American Epilepsy Society Conference
- Psychosocial Comorbidities SIG: Whole Person Health – Prioritizing Care Partner Well-Being in Epilepsy, Stand by Me: Empowering Care Partner Dyads in Epilepsy. 2025 American Epilepsy Society Conference. Atlanta, GA.
- Patient Voices Across the Life Span. The Evolving Needs for Seizure Rescue Medications and Seizure Action Plans. 2024 American Epilepsy Society Conference, Los Angeles, CA.
Other Professional Organizations
- Epilepsy Mortality Prevention Legislation: Opportunities to advance state-level policy. 2025 American Public Health Association. Washington D.C.
- Turning Challenges into Solutions: Advancing Epilepsy Care Together. 36th International Epilepsy Congress (2025). Lisbon, Portugal.
- Digital Solutions for Clinical Trials and Beyond. Epilepsy Foundation 2024 Pipeline Conference, Atlanta, GA.
- Mortality in Epilepsy: Nurses Tackling the Difficult Conversations. 2023 American Association of Neuroscience Nurses Conference, Orlando, FL.
- Common Learnings to Improve Standardized Seizure Documentation Process. 2019 Epilepsy Learning Healthcare System’s Spring Learning Session, Philadelphia, PA.
Personal Perspective Presentations
- 20+ Years with Drug-Resistant Epilepsy. 2026 NIH Curing the Epilepsies Conference, Session V: Treatments for the Epilepsies, Bethesda, MD.
- The lived experience. A personal journey with epilepsy. 35th International Epilepsy Congress (2023), Dublin, Ireland.
- Why Epilepsy is Different for Women? A Clinical Perspective. A 2023 virtual conference presented by the International Bureau for Epilepsy.