Find out what other people are saying about Alison!
Alison is one of the most thoughtful, dedicated, and inspiring collaborators I have had the privilege to work with. She brings a rare combination of intellectual curiosity, deep empathy, creativity, and tireless dedication to every project she joins. Her ability to listen deeply, ask the right questions, and help shape meaningful, patient-centered work makes her an extraordinary collaborator and advocate.
Itay Tokatly Latzer, MD
Epilepsy Division, Neurology Department
Boston Children’s Hospital
It has been my pleasure to work with Alison for the past 5 years in a variety of professional settings and roles. As an advocate she is able to express the perspectives of the patient community whether talking about public health, grief, policy or the relationships. She does this in a clear, understandable and engaging fashion whether speaking to an individual or an audience of 500. As an consulting strategist, I have always been impressed with her ability to help focus a work effort, organize people and documents, maintain a timeline and bring a project to completion (frequently under budget!).
Jeffrey Buchhalter, MD, PhD, FAAN
Buchhalter Consulting, PLLC
Alison’s diverse and impressive professional history has given her incredible insight and connections. She is a true collaborator who leverages her strong relationships to yield impactful results. She uniquely tackles projects with both a strategic mindset and ability to oversee and drive forward complex details. Above all, Alison brings significant commitment and thoughtfulness to her work every day—clearly demonstrating her passion to improve the lives of others.
Laura Weidner
Chief Advocacy & Government Relations Officer
Epilepsy Foundation of America
Alison brings unmatched organizational skills, deep knowledge of the disability community, and a unique ability to bridge her lived experience as an advocate with her expertise as a public health professional. Her passion for helping people with epilepsy and her talent for connecting diverse stakeholders have been invaluable contributions to PAME.
Gardiner Lapham, MPH, RN
Founder and Co-Chair
Partners Against Mortality in Epilepsy
Alison has a remarkable ability to engage audiences, communicate complex concepts with clarity, and foster productive dialogue among diverse stakeholders. Beyond her strong presentation skills, she is a strategic partner who listens carefully, asks the right questions, and helps teams turn conversations into actionable outcomes. Working with Alison consistently elevates the quality and impact of our initiatives.
Michelle Finegan
Sr. Director, Patient Advocacy and Strategic Alliances
Neurelis
Alison brings a rare and powerful combination of lived experience with epilepsy, public health expertise, and a deep commitment to the community. We’ve had the privilege of working with her across several epilepsy research initiatives, where her insight and collaboration have helped ensure our work remains relevant and grounded in the needs of people living with epilepsy. Alison is an exceptional partner; she is thoughtful and mission-driven, skilled at bridging the perspectives of researchers, clinicians, advocates, and people with lived experience. She is the kind of partner who strengthens every project she touches. We are grateful for her partnership and for the impact she continues to make across the epilepsy research landscape.
Caitlin Grzeskowiak, PhD
Chief Research and Innovation Officer
Epilepsy Foundation of America
Jackie French, MD
Professor
NYU Comprehensive Epilepsy Center
I’ve had the pleasure of working with Alison for several years and am continually impressed by her professionalism, openness, and commitment to meaningful engagement. She brings an authentic patient voice in how she shares both challenges and opportunities for people living with epilepsy and the broader patient advocacy community. Alison effortlessly builds strong, multi-stakeholder relationships and is well connected globally. Alison is incredibly easy to collaborate with, has a great sense of humor, and continually brings a positive energy and passion that inspires real impact.
Danya Kaye
Patient Engagement & Advocacy Lead, Epilepsy
UCB
We’ve had the privilege of partnering with Alison on a program focused on one of the epilepsy community’s most difficult and important topics—mortality in epilepsy. We created a space for education, connection, advocacy, and support for bereaved families. Alison brought together a group of expert speakers, kept every detail organized, and ensured the program ran smoothly from planning through execution. She is a natural connector who brings people together around a shared purpose, and her thoughtful, proactive approach means there are never last-minute issues or surprises. Alison’s passion, professionalism, and ability to build meaningful relationships makes her a pleasure to work with and an important part of the program’s success.
Mary Duffy
Executive Director
Tom Stanton
President
The Danny Did Foundation